Decisions No Parents Plan

So here we find ourselves again debating yet an other decision that must be made quickly.  As most of you know, Abbigail has had little to no luck when it comes to accessing her veins for treatments or even blood work for that matter, and so after many requests, we had a Port-a-Cath (PAC) line surgically inserted to allow for easy and virtually pain free access to her artery for treatment and blood draw.  This was inserted in April 2012 and we were told that it can last anywhere from a couple months to even years.  Abbigail’s has officially been displaced within her body and must be removed after almost 11 months of constant use.  This will require yet an other surgery, however not too complicated of a procedure.




Abbigail still requires two more rounds of chemo for this course of treatment, in addition to her monthly IVIg infusions that have no end date in sight so after much debate and discussion with each other, doctors, nurses, our oncology team and even Abbigail, we have decided it is best to have it removed and replaced with a new one.

This is just an other decision we have had to make on her behalf that breaks our hearts…

We have been placed on the “urgent surgeries” list, meaning we will be waiting by the phone for a call from the hospital stating that Abbigail is scheduled for surgery within 24 hours.  The last time we went though this, they called tuesday at 3pm and we had to be there at 8am the following morning.  So we hope that within the next week or so she has her new and functioning port!

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