Abbigail’s spirit is such a gift. Something so special it is just as rare as her diagnoses. She runs at her challenges and faces them head on…never giving up.
We have stood up for her, battled for her and carried her for over three years as she suffered the unimaginable over and over again. We are tired. She is tired. Her brothers are tired. Our family is tired. Exhaustion never stopped Abbigail to date. It won’t stop us either. As we watch her get up from a fall, shake as she tries to cap her lipstick or repeat herself tirelessly to get her thoughts across, we are never short on inspiration. Abbigail is not giving up!
Over the last few weeks we have brought Abbigail for blood work, tests, clinic visits and we’ve watched her fall asleep by anaesthetic a handful of times. All in the name of hope. We had hoped to find an explanation for her symptoms, her lack of improvement and the nodules riddling her liver and threatening her future…her spirit.
The latest scans, done on Thursday, revealed multiple new lesions, growing and enhancing nodules and possible damage to surrounding areas and organs. She is experiencing some abdomen pain and back pain, above and beyond her chronic pain caused by year’s of steroid treatments, chemotherapies and in addition to her torturous OMS attacks and flares. Her liver enzymes measured in her blood are slightly elevated however other than these symptoms, we have no other explanations or indications to provide answers for these aggressive nodules in her liver. We have consulted physicians at both CHEO and SickKids. We have a team of oncologists, neuroblastoma specialists, radiologist, pathologists, and surgeons reviewing her images, lab results and biopsy slides trying to piece this mystery together because she is falling into every minority, rarity and impossible diagnosis. To date we have eliminated many possible diagnoses but have still not been able to dismiss more Cancer.
Tomorrow this team that cares for Abbigail, their little hallway hero, the firecracker they all know, recognize and hear in the halls several times a week, will meet again to plan the safest way to obtain a new piece of tissue from the largest of tumours in her liver, on her backside. The hope is that this could provide insight and a path forward for treatment. She is not in any immediate danger and she is far from critical, however time is of essence because as we have seen, within a week these ugly things have already grown and spread and have been steadily doing so since December.
Abbigail will continue to fight and we will fight with her…
Please keep her in your prayers.