Growing up with Molly Penny’s Love

Growing up in a hospital isn’t all bad.  For Abbigail, she has friends, fun and Molly.  Since the very first few days, Abbigail has found the joy within those grey walls and she brought her contagious smile no nurse could resist.  So even on those dreaded inpatient days, Abbigail was happy in the playroom, riding her cars down the halls when she couldn’t walk anymore, pulling her IV pole with her and trying to catch up to the older kids.  It is rare to see a young child on 4N with self pity.  Much like Abbigail, most of them do not know any different since their life has always been at the hospital.  Luckily though, on those difficult days where procedures were feared, and chemos were hard, Molly Penny was only a holler away.  In the halls of CHEO walks a retired ER nurse who just couldn’t stay away from our kids.  Her heart beats in the halls, she creates shrieks of joy and laughter in the waiting rooms, and she makes CHEO a home for children away from home for so long.  With the help of the amazing Child Life Specialist, Molly Penny is by far one of the reasons Abbigail has gotten through some of her darkest days and toughest tears…

Abbigail has a lifetime at this hospital behind her already and still more ahead of her.  Having a disease with no cure means just that.  We are so grateful to have Molly by our sides when we are scared, upset or just need a good old fashioned laugh or two.  She doesn’t just help Abbigail and all of the kids, she is always making sure us parents are taken care of too, whether its just a coffee or a huge loving hug.  She is a huge part of CHEO’s heart and we will always keep her in our hearts. We love you Molly!

 

This morning we are off to CHEO again, to hopefully get more answers and a clear path forward for the neuroblastoma so that we can return to focusing on the OMS and giving some quality of life back to our precious girl. Today Abbigail will enter the “big orange door” again to Nuclear Medicine where she will have an other substance injected into her veins to be imaged which is more specific to bones. She has had this scan before and it is much the same as last week’s so let’s keep our fingers crossed that she is just as brave again! Mama is very happy to be by her side today, these moments are milestones for her, just as walking, talking and going to school are for every other child, and I can’t bare to miss anymore. I don’t ever want her or the boys to doubts desire to be there for them through it all, including the darker milestones.

It is with a hopeful heart and a desire for relief for our girl that I ask you to pray and offer your good thoughts today as she faces more scans, tests and procedures.

We may walk in through the orange door with fear and uncertainty but we will walk out with faith that no matter what happens afterwards, we will get through it together.

If you take a moment to stop and listen today, you will hear the unique sound of a young girl, fighting for her life, through joy and laughter with Molly Penny and her love. Just listen…

Spring! New Beginnings…

At least she found a hat & mitts!
At least she found a hat & mitts!

Although it doesn’t look much like spring outside our door right now, Abbigail felt the urge to run outside onto the deck without her jacket! Did I ever mention what a firecracker she is…really!

Today is the first day of Spring and I for one am looking forward to a fresh new perspective. We all know that before we get to sit outside and soak up some spring sun that we must first sludge through the melting snow, dirty slush and wet socks. Abbigail still has two more chemos to go this month and once that sludge is past we too will enjoy some new beginnings this year.

This fight isn’t over and we understand what we are up against, and we are prepared to hold each other throughout this journey together and if we have to weather an other tough winter we will again look forward to the spring.

Abbigail is very tired the last few weeks and so far we haven’t seen a change in her since we started this chemo two weeks ago. We know it can take time to see results as we are slowly killing off her immune system one cell at a time. So for now we just weather the storm and pray we find some peace in all of this uncertainty.

Speaking of uncertainty, I finally contacted the family of the other OMS case that came through CHEO 9 years ago. I have had their information for five months now and I have put off contacting them out of fear. I know it sounds silly and I have heard it all before, that they are sure to bring me comfort and affirmation, that our daughter will be ok, but fear is stronger than logic. So we will see what comes of this.

Yet an other new beginning?