Growing up with Molly Penny’s Love

Growing up in a hospital isn’t all bad.  For Abbigail, she has friends, fun and Molly.  Since the very first few days, Abbigail has found the joy within those grey walls and she brought her contagious smile no nurse could resist.  So even on those dreaded inpatient days, Abbigail was happy in the playroom, riding her cars down the halls when she couldn’t walk anymore, pulling her IV pole with her and trying to catch up to the older kids.  It is rare to see a young child on 4N with self pity.  Much like Abbigail, most of them do not know any different since their life has always been at the hospital.  Luckily though, on those difficult days where procedures were feared, and chemos were hard, Molly Penny was only a holler away.  In the halls of CHEO walks a retired ER nurse who just couldn’t stay away from our kids.  Her heart beats in the halls, she creates shrieks of joy and laughter in the waiting rooms, and she makes CHEO a home for children away from home for so long.  With the help of the amazing Child Life Specialist, Molly Penny is by far one of the reasons Abbigail has gotten through some of her darkest days and toughest tears…

Abbigail has a lifetime at this hospital behind her already and still more ahead of her.  Having a disease with no cure means just that.  We are so grateful to have Molly by our sides when we are scared, upset or just need a good old fashioned laugh or two.  She doesn’t just help Abbigail and all of the kids, she is always making sure us parents are taken care of too, whether its just a coffee or a huge loving hug.  She is a huge part of CHEO’s heart and we will always keep her in our hearts. We love you Molly!

 

This morning we are off to CHEO again, to hopefully get more answers and a clear path forward for the neuroblastoma so that we can return to focusing on the OMS and giving some quality of life back to our precious girl. Today Abbigail will enter the “big orange door” again to Nuclear Medicine where she will have an other substance injected into her veins to be imaged which is more specific to bones. She has had this scan before and it is much the same as last week’s so let’s keep our fingers crossed that she is just as brave again! Mama is very happy to be by her side today, these moments are milestones for her, just as walking, talking and going to school are for every other child, and I can’t bare to miss anymore. I don’t ever want her or the boys to doubts desire to be there for them through it all, including the darker milestones.

It is with a hopeful heart and a desire for relief for our girl that I ask you to pray and offer your good thoughts today as she faces more scans, tests and procedures.

We may walk in through the orange door with fear and uncertainty but we will walk out with faith that no matter what happens afterwards, we will get through it together.

If you take a moment to stop and listen today, you will hear the unique sound of a young girl, fighting for her life, through joy and laughter with Molly Penny and her love. Just listen…

March Break…Living!

Sugar bush, pyjama days, some warmer weather, a couple chemotherapy treatments, breathless times at cosmic adventures for the big boys, a sleepless night in a hotel, many splashes at the indoor waterpark, late night hockey game in a special suite, some meltdowns and screaming matches, lots of hugs, kisses and laughter and we did it all together! We had a great March break, we hope that you did too! xo

Disney on Ice

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Sugar Bush

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Outdoor Fun

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Second of Four Chemo Treatments this Month {We Fight as a Family}

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Cuddles

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Indoor WaterPark {Hotel Stay-cation with Doctor’s Blessing}

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Welcome to my blog!

02 26 2012 (395 of 608)Welcome to my blog!  I am new at this whole idea, however think it will be a great place for me to not only keep you all in the know when it comes to Abbigail but also a place where I can share my thoughts and perspectives as a momcologist {mom-oncologist aka mama of one brave cancer fighting child}.  I can’t promise a nail biting read each and every time, nor can I say that this will be great entertainment but I do tend to write a lot and I love speaking my mind so what you will get here is real, raw and truthful feelings and perspectives.  There is likely to be plenty of talk of my life as a stay at home mama of three spirited children, some ramblings of medical talk and self-discovery , definitely some humour because laughing is the best medicine and I can guarantee there will be plenty for you to share!  I won’t bore you with long posts all the time, I will be sure to add in a few little updates here and there on our family, how Abbigail is doing, plenty of facts about her diagnosis, question and answering posts and lots of pictures and video links.  I am so excited!

If you notice on the top of the page I have some permanent links to information that I may update from time to time so be sure to check back often and subscribe to my RSS feed to be sure not to miss anything. I also like to stay mainstream lol and being the techno geek that I am, Twitter followers will get regular notices of my updates and Abbigail’s Facebook friends will too!

Thank you so much for reading and I hope to give you a reason to come back soon!