Our Firecracker…Explosive but Beautiful, Unique & Radiant.

Oh Abbigail, our Firecracker, you never cease to shine through your struggles!

Today was a gorgeous day outside, the skies were blue, grass was sprouting and the toys aren’t buried in the snow anymore! Abbigail saw the colours in the windows of her toys from what seemed like a lifetime ago. This winter was long and for a child like Abbigail, it was longer! With a compromised immune system the entire winter, 8 rounds of chemo and a spirited personality we didn’t go anywhere for months! Today was a breath of fresh air though and once Abbigail noticed those toys, the boots were on and bush coat buttoned running for the door.

I let her loose! Boy did she run…

Abbigail has always been an active girl, spirited, loving life and every moment offers her a new opportunity to enjoy the simple things. Today reminded me of that girl. I jokingly call her my Firecracker because she is loud, impossible to miss, brightly explosive and UNPREDICTABLE, but she is more than the moods and behaviours OMS has imposed on her. Abbigail is our beautiful, bright, excited and colourful girl who brings out the best in anyone who is lucky to have her in their life.

I get tired sometimes and frustrated with our situation but the truth is I feel blessed when I look into our daughter’s eyes and see the joy she has for life in face of all that she endures.

My Firecracker Abbigail…my precious baby girl!

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Happy Easter Adjustments

An other holiday celebrated unlike any other that have preceded. Much like last Easter and then Christmas, this Easter weekend was not without its challenges, however we overcame them together and ended with smiles and memories for years to come.

We completed our course of chemotherapy, I often – if not always, say “we” freely when referring to cancer/OMS treatment and journey because I would never dream of letting my baby do it alone (I’d do chemo if they let me), so we completed the fourth treatment, we seem to have overcome the gastro bug that knocked Us out and we made it through an other holiday!

Friday was a nice day, we relaxed and hung out at home as a family not doing much of anything except enjoying each others company, some more than others I imagine since we started our pulse steroid treatment at home so Abbigail is not always “pleasant” to her brothers. Nonetheless, Friday was nice! Saturday morning William stood at the window for what felt like an eternity, repeatedly asking when his grandparents, uncle and most importantly, his cousin would be arriving. Since it was only 6am, we attempted to convince him to keep busy as it wouldn’t be until well after lunch until they arrived. Wow was that a long morning! Once family arrived, toys flew, babies screamed and the boys had fun! I love watching my oldest son and my nephew play, it brings me back to the days I used to con and bribe my little cousins. Abbigail tries so hard to fit in and most times does with those two but this weekend wasn’t her finest of days. I won’t go into detail, but she was a wreck. A ball of pain and emotion! She’s recovering from surgery, getting over the flu still and on steroids. Enough said. If you still don’t know why that would be so bad, I’ll write about life with steroids for you. The kids had fun and the bunny left behind plenty to be grateful for. Although these holidays have changed, some being consumed by medication, ER visits (like Christmas Day) and symptoms of the disease, chemo and drugs, we are together!

Family left, the mess is cleaned and the babies are asleep.

Reflection…

Easter is about sacrifice for the greater good. Sacrificing for those we love and something bigger than ourselves or us together. Everyday Abbigail sacrifices and everyday our family does too. We sacrifice more than any person could imagine and I only hope that it too is for a greater good. I will continue to fight with and for my baby girl knowing in my heart that one day these painful days are a distant memory only thought of as a reminder of what we are so grateful for. Abbigail will move mountains and she will help others through her journey…together we will come out stronger and that is enough to make these sacrifices into stepping stones.

Happy Easter!

Despite the sad few days she has had…she is still our fun loving and candy obsessed daughter!

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