I’ve avoided this video for two days now, knowing fully that I didn’t have it in me right now to watch it, feel it and relate way too closely to it. It has taken me two days to muster the courage to watch it and three hours to watch this 23 minute clip.

I am so glad I did because he is an inspiration and if our Abbigail could speak, I know that she would resonate his passion but I can’t help but hate cancer a little more now. Maybe tomorrow I will try to see the gifts…

So I have been busy! Who would have thought right? I mean I don’t work, I don’t go out, have very few things to do other than care for my family and keep our home, so why am I so run down, exhausted physically and mentally and seemingly unaccomplished these days right?!? All jokes aside, I have been a little overwhelmed these past couple of weeks.

I apologize to our faithful and dear followers, I haven’t been posting or updating on Abbigail since…well Easter. With Abbigail’s recent chemo treatments, she has been more tired than before and definitely more dependent on me. I can no longer go anywhere without her, not even the other room at times. She had her surgery for her new port a couple weeks ago and then our whole family decided to take turns each day with some gastro bug and then I stop sleeping! So although it has been busy, I have found some time and made quite a few updates to the webpage’s links above that I hope you will find helpful. They will allow you to know more about Abbigail’s ongoing brave journey {her treatments} as well as to acknowledge so many amazing people and supporters {thank you}.

I hope you can take a minute to check them out and you might find other links and updates that I have changed or completed!

We hope to see you there!
We hope to see you there!

Something super exciting to share with you; we have recently found out that some of my co-workers, friends, family and strangers alike, have come together and are hosting a Fundraiser in honour of Abbigail that will benefit her Fund, Kisses for Abbigail! We are so very blessed to have such amazing people who care so much about Abbigail and who are helping our family during these trying times. I have published a few details about this amazing event on the {fundraising} page and will be posting more updates as they come to me! We are so excited for this night, and look forward to seeing all of Abbigail’s supporters and hopefully a sea of pink wrists. We have our fingers crossed and will be praying that Abbigail will get the “green-light” from her oncologist and that her blood counts are at a safe level allowing her to come and dance her little heart out with her big brother William. Those two are dancing machines and are sure to steal some hearts that night! Hope to see some of you on Friday, May 24th!

Thank you to the Peplinskie Family for putting the wheels in motion for this wonderful night ❤ xox ❤

Well it is late, and although I can’t sleep, I should at the very least lay down and rest before this unwelcome snow storm comes to town and cancels the school buses, leaving me to be creative with one teething sick Madden, a bored five year old William and of course the spirited raging but ever so sweet and squeezable Abbigail!

Wishing our nurses at CHEO in the MDU and 4N a warm and joyous day as they reflect on everything they have done for us this past year.

Abbigail has been lucky to have found a great love for her nurses. She insists on taking their photos to bed and kissing them each time we pass by them in her room. She has not slept a single nap or night at home without her nurses and I for one could not be more grateful. Although Abbigail has received amazing care from everyone at CHEO, these women I am thanking the Lord for today were hand picked for my baby. Tears of joy and gratitude overwhelm me when I think of how much they have changed our oncology life and journey.

We love you so much…you know who you are!

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{Below is my updated post from last week – painfully repeating the words through many calls, texts and messages, I realized I was not clear. Please accept my apologies and sincerest thanks for your understanding support and love}

We received the full report recently from Abbigail’s most recent MRI scan.

My Hero <3
My Hero ❤

The long day of fasting and being bumped on the scan schedule endlessly was worth it. At that moment on February 25th, the cancer had not reared its unwelcome face again, as there were no visible tumours found on her scans, medically the doctor’s report states “no evidence of disease,” and we couldn’t be happier! Each time she has been scanned this past year, we get one step closer to days without cancer on the brain, although Abbigail does not have any evidence of disease today in her body, the reality is that she poses a higher risk than the average child to have subsequent cancers or to still have premature cancerous causing cells still in her body, undetectable to scans yet. What this means is that she is not actively fighting cancer right now, but her fight is not over and the fear of cancer will never be over. As years pass, and more scans return NED {no evidence of disease}, Abbigail is further from cancer and the possibility of battling with it again. Every cancer has a different “time-frame” to be monitored post active treatment, for Neuroblastoma, for about two years post treatment, follow-up tests and scans are every three months, then every six months and eventually none unless symptoms present themselves again. It is hard not to worry, however the further from treatment Abbigail becomes, because the symptoms of relapse can be similar to those of a host of childhood illnesses and conditions and we must continue to be vigilant.

So here we are, not directly fighting cancer, but its rare creation – OMS! We hope and pray and maintain faith that one day we will get to where we are supposed to be with her OMS but in the meantime we will battle with Abbigail and enjoy the moments along the way…we will get there one day at a time.

Abbigail was a real joy that day, despite the difficult circumstances, and she spread her smile throughout the halls as we passed the time visiting friends, favourite nurses and even crashing a private playroom for a quick nap. She truly has some of her best moments and days at CHEO. As strange as that may seem to an outsider, she has spent the most vulnerable days in that place and had many strangers touch her life quite literally and to her it is a place away from home that she is comfortable in. She has much love there and is quite the shining star.

Off to spread some more joy!
Off to spread some more joy!

Here she is, sure to keep the nurses on their toes in MRI, when she awoke from her anaesthetic she didn’t waste a minute’s time, she tore out her IV before her meds could even be pushed through the line! She is a firecracker!!!

Abbigail has made a name for herself at such a young tender age, she is one of the 2 cases known at CHEO of OMS and she continues to fight this battle with every willed fibre in her tired little body. Don’t get us wrong, we are thrilled and remain positive and optimistic for our baby girls future but take this news with the understanding that her toad doesn’t end here. Please take this news of her recent scan and wish for many more shiny tumour free scans in the future as our baby girl has endured enough and will continue to endure what this life long battle trows at her. With no cure she will have a life of battling and so we ask you to pray we do not have to watch her battle cancer again too.

Beautiful even post-aneasthetic
Beautiful even post-aneasthetic